News

Sunday 8th September 2013

Keighley Show 2013

After the washout summer of 2012 when the Keighley show was cancelled due to a waterlogged site the branch made it to the 2013 Keighley show on 7th September. After a successful tombola in 2011 it was decided to try and raise awareness by tempting showgoers with delicious cakes!

The emphasis of the day was to raise awareness of Huntington's disease and raise the profile of the branch. Chair Chris was able to talk to the local MP about the illness and make him aware of how local families are affected and the valuable work that the HDA do to help (not to mention the national network of branches and support groups).

Towards the end of the day branch members Jackie and Roz trawled the show with the remaining cakes trying to sell as many as they could 'Apprentice' style while handing out leaflets and chatting to people about Huntington's disease.

A huge thanks to all the branch members that provided cakes and to everyone that helped on the day. The event was a big success with lots of leaflets being handed out and nearly all the cakes being sold which boosted the branch funds by over £150. Well done everyone!

  • The all important cakes

    The all important cakes

  • The all important volunteers

    The all important volunteers

  • Invaluable volunteers with the cakes

    Invaluable volunteers with the cakes

  • Branch Treasurer Linda lends a hand

    Branch Treasurer Linda lends a hand

  • Branch Chair Chris chats with the local MP

    Branch Chair Chris chats with the local MP

  • Volunteer Peter looks after the toys

    Volunteer Peter looks after the toys

Sunday 14th July 2013

Branch Family Day

After the success of the branch family day in July 2012 branch members met up again in Roberts Park Saltaire for the second branch family day. Quite a few people attended on what turned out to be one of the hottest days of the year and shared picnic style snacks and food.

Due to the success of this event we hope to stage the family day every summer (weather permitting!!) and look forward to seeing you there next year.

Sunday 23rd September 2012

Yorkshire Three Peaks Challenge Success (at last!)

After having to postpone the challenge in June due to extreme weather conditions the team, Chris, Mark, Pete and Ruth were able to successfully complete the 3 peaks challenge on Saturday 22nd September covering 24.8 miles in a fantastic time of 11 hours and 12 minutes.

The team met at 0730 at the Pen-Y-Ghent Cafe in Horton in Ribblesdale and set off for the first peak, Pen-Y-Ghent with Chris' son Peter at 0750 in dry, bright but crisp conditions. The first peak was scaled fairly quickly and then it was time for the descent to the first checkpoint.

Just before 1200 the team arrived at the first checkpoint and were met by the support team of Nicky, Pauline and Sukie. This was a chance to have a quick break, a bite to eat and a change of socks after the first 10 miles! Then it was off again to scale the second peak of Whernside which proved challenging as it was a long slow ascent to the summit. The team were rewarded though with wonderful views of Pen-Y-Ghent, Inglebrough, Morecambe Bay and the surrounding valleys.

After a quick break, refuel and some pictures it was time for the descent to the next checkpoint where the team were met by the support crew again for a top up of supplies ready for the next leg, Inglebrough. After a gentle climb the team were confronted by the near vertical climb up Inglebrough. It was a case of head down and keep climbing - no looking up! Soon after the summit of Inglebrough was reached with another opportunity of fantastic views and photos.

The descent from Inglebrough was slow and a little painful but the team arrived back at the Pen-Y-Ghent cafe round about 1900 where they were met again by the support team, time to check in and head home, proud of the fantastic acheivement!

A huge thanks to everyone involved, especially the support team but not forgetting everyone that supported and sponsored this event. The final total is yet to be confirmed but we estimate about £1100 has been raised, a fabulous total!

  • The team assemble at the start point

    The team assemble at the start point

  • Looking up Pen-Y-Ghent

    Looking up Pen-Y-Ghent

  • Halfway up Pen-Y-Ghent

    Halfway up Pen-Y-Ghent

  • At the summit of Pen-Y-Ghent

    At the summit of Pen-Y-Ghent

  • Looking back at Pen-Y-Ghent

    Looking back at Pen-Y-Ghent

  • A welcome break at checkpoint 1

    A welcome break at checkpoint 1

  • The team about to set off for Whernside

    The team about to set off for Whernside

  • The all important support team

    The all important support team

  • Nearly at the top of Whernside looking back

    Nearly at the top of Whernside looking back

  • Whernside summit looking back at Pen-Y-Ghent and viaduct

    Whernside summit looking back at Pen-Y-Ghent and viaduct

  • Summit of Whernside, Inglebrough in background

    Summit of Whernside, Inglebrough in background

  • The team at the summit of Whernside

    The team at the summit of Whernside

  • Summit of Whernside looking toward Inglebrough

    Summit of Whernside looking toward Inglebrough

  • The team descend Whernside

    The team descend Whernside

  • The team enjoy a welcome break at checkpoint 2

    The team enjoy a welcome break at checkpoint 2

  • Inglebrough!!

    Inglebrough!!

  • The team with Inglebrough

    The team with Inglebrough

  • The steep ascent of Inglebrough

    The steep ascent of Inglebrough

  • Nearly at the top of Inglebrough looking back

    Nearly at the top of Inglebrough looking back

  • Looking back at Whernside from Inglebrough

    Looking back at Whernside from Inglebrough

  • The summit of Inglebrough, Morecambe Bay in the background

    The summit of Inglebrough, Morecambe Bay in the background

  • The summit of Inglebrough, Lake District in the background

    The summit of Inglebrough, Lake District in the background

  • The team at the summit of Inglebrough

    The team at the summit of Inglebrough

  • The descent of Inglebrough

    The descent of Inglebrough

  • Success, at the finish point!

    Success, at the finish point!

Wednesday 1st February 2012

Research into Huntington's Disease in Families

Caroline Maxted, a Trainee Clinical Psycologist at Lancaster University, attended the last branch meeting and AGM to explain about some research she is conducting related to Huntington's Disease in families. Her presentation was very interesting and sparked a lively discussion.

Caroline is seeking volunteers to help with her research which is detailed below. If you are interested in taking part then please contact Caroline directly or contact us and we will pass on your details.

"I am interested in the psychological impact of Huntington's Disease on families. I will be conducting face-to-face interviews with parents and their adult children within families affected by Huntington's Disease in order to learn about the impact of Huntington's Disease on family relationships. I'm hoping that my findings will help to improve the support that families with Huntington's Disease get from services. I would like to talk to parent and child pairs from families who are at risk for Huntington's Disease and are living in England, Scotland or Wales. Unfortunately I can only interview people who are over the age of 18. If you are a member of an at risk family and if you are interested in taking part in this research, please contact me for further information. Or, if you are unable to take part but know of others who may be interested, please pass on my details".
Caroline Maxted
Trainee Clinical Psychologist, Lancaster University
c.maxted@lancaster.ac.uk
07508 406276

Click here to download the participant information sheet.

Thursday 26th January 2012

Branch AGM and Meeting

The branch held a successful AGM and meeting at the Midland Hotel in Bradford where Chair Chris Kates reviewed the events and meetings of the past year and outlined the plans for the coming year.

As is customary there was an election for the roles required to run the branch, the results of which are as follows:

  • Chair - Chris Kates (re-elected)
  • Vice Chair - Jo Hague
  • Treasurer - Linda Quartermaine
  • Secretary - Nicky Smith (re-elected)
  • Communications Officer - Mark Armitage (re-elected)
In addition to the above Sarah Throp and Pauline Skarrot agreed to continue their role as committe members.

Caroline Maxted, a Trainee Clinical Psychologist from Lancaster University, outlined some research that she is conducting about Huntington's Disease in families (more detail to follow). The meeting was well attended and it was good to see some new faces.

Thursday 5th January 2012

Antiques & Fine Art Fair at Harewood for the HDA

The Branch has been sent some complimentary entrance tickets for the first Luxury Antiques and Fine Art Fair to be held at Harewood Pavillion, Harewood House, Leeds from 27th - 29th January 2012. Tickets would normally cost £5 each but the complimentary tickets admit three people per ticket and are therefore worth up to £15 each. The Fair will be raising funds for the HDA. If any members would like a complimentary ticket, please use the contact us page giving a postal address and I will happily send them a ticket? Alternatively I will have the tickets at the AGM later this month.

Best wishes and a Happy New Year to all,

Chris Kates
Chair
West Yorkshire Branch
Huntington's Disease Association

Wednesday 4th January 2012

Good Housekeeping Magazine

A freelance journalist specialising in human interest features mainly for women's magazines is currently working on a feature focusing on Huntington's Disease.

The feature is aimed at Good Housekeeping magazine and will simply look at the issues involved in coping with a terminal illness that is passed between the generations. She keen to speak with women aged 35 - 50 who are currently living with the disease.

Case studies will need to agree to be photographed but will be able to read the copy prior to publication. If you are interested in being involved and would like more information then please use the contact us page and we will get back to you as soon as possible, please note we will not pass any details on to the journalist without your consent.

Saturday 16th April 2011

Branch Secretary Nicky Smith Freefalling

Branch Secretary Nicky Smith jumps out of a perfectly good aircraft to raise funds for the HDA!

Just after 8am on a gloriously sunny 16th April Branch Secretary Nicky Smith arrived at Skydive Brid, Grindale, Bridlington to do a tandem skydive to raise money for the HDA.

Training consisted of a briefing from an instructor followed by practising laying on the ground followed by a lengthy wait in the sun while the other tandem jumpers made their jumps first. After watching three others go up and come down safely (but much quicker) it was Nicky's turn at around 13:30.

Going up to 10,000ft in a small aircraft with the door open and watching others jump out was really easy for Nicky - being scared of heights and never wanting to fly in a small aircraft!! This was nothing compared to what was to follow.

The instructor edged towards the door and for a couple of seconds the harness was all that was stopping Nicky leaving the plane. Then it was head back and off! After about 10 - 15 seconds of freefalling the chute was deployed and it was a gentle descent back to earth. The first thing Nicky uttered on landing was "Oh my god that was brilliant I want to do it again".

Not only did Nicky manage to meet this personal challenge she raised around £1000 (final total to be confirmed) for the association and has got herself a new hobby!! Well done Nicky!!!

Wednesday 6th April 2011

Branch meeting - Midland Hotel, Bradford

Members of the recently re-launched West Yorkshire Branch of the HDA are welcomed to the Midland Hotel in Bradford by the hotel's General Manager, Mr Gary Peacock. The Midland Hotel is generously supporting the West Yorkshire Branch by providing a meeting room free of charge. The West Yorkshire Group hopes to meet bi-monthly and intends to alternate its meeting venue between central Bradford and Leeds. The next meeting is planned for early June, final date yet to be confirmed, and will be in Leeds.

The Group is also planning its programme for the summer and into the autumn. Social and awareness raising events are high on the agenda, along with some fund raising. New members are of course always welcome and can contact chair, Chris Kates at chrisgetsmessages@tiscali.co.uk or on 07969 634983.